People living with vitiligo bring unique perspectives—points of view shaped by different feelings and experiences over time. These are Points of Vitiligo, and we’re working together to uncover more of them. Because there’s more to the story, and it’s time to share yours.
The point is, vitiligo affects people differently. Hearing different perspectives may help you feel validated.
SEE STORIES LIKE YOURS
Getting real about vitiligo
People living with vitiligo know what it’s really like. That’s why we brought people with vitiligo together to share their Points of Vitiligo—their perspectives, stories, and experiences. Don’t miss these candid conversations and honest takes about life with vitiligo. It’s important for people with vitiligo to feel represented and less alone in their journey.
Mobola and Bryson sit on lounge chairs angled towards each other. A boom mic hangs over them. Three sunlit windows border the set’s background. Mobola is a young black woman with afro-textured hair. The skin around her eyes and mouth has pigment loss. Bryson is a young white man with short hair. He has white patches across his eyebrows and facial hair.
BRYSON: How do you feel?
MOBOLA: I am really excited, because I've never really sat down and had a conversation with somebody else that has vitiligo.
A close-up photo of Mobola appears. Her eyes are closed. She has white patches around her eyes, nose and lips.
NARRATOR: Life with vitiligo, it's unique to every person living with it; and it’s time we start seeing all different points of view.
Risa’s skin is blotted with pigment loss on her arms, neck, and chest.
RISA: As I looked at old pictures and I was just curious, I'm like, "Oh, brown skin. It's kinda boring." Like, now I think I really like it. (laughs).
An old photograph of Mike as a dark-skinned young man. Now, his skin is entirely white.
MIKE: Looking in the mirror, I- I see myself and I- I- I can't find any other word but jarring.
Kresha talks to Mike, her black skin speckled with pigment loss near her mouth and nose. A smiling photo of her and her daughter appears.
KRESHA: I have a daughter now. She's six. I don't want her to see me unconfident. I want her to be confident too. She loves me just like this.
NARRATOR: So, we asked 11 people from different backgrounds to share their true perspectives.
The group of individuals with vitiligo exchange smiling handshakes and take their seats around a table.
Then, Mary, a young black woman, watches a projection of herself in a bikini. Her face and body are spotted with patches of white.
MARY: There's still like this internal battle where I doubt my beauty and I (laughs) always will.
TEXT ON SCREEN: THESE ARE THE
[POV logo]
POINTS OF VITILIGO.
NARRATOR: These are the Points of Vitiligo, the feelings and experiences shared from every angle.
A photo of Mary appears, standing on a beach with her arms crossed.
Brandon, a bearded man with dark hair, has pigment loss around his eyes, mouth, and neck.
BRANDON: I never fully don't have that shield on.
A photo of Walkenia and Joshua appears. Walkenia hugs Joshua’s shoulders - he has pigment loss along his arm.
NARRATOR: From the ups…
Chloe talks to the camera - she has pigment loss around her neck.
CHLOE: But it's beautiful, and that's what makes us unique.
A photo of Risa appears. She has pigment loss around her eyes and mouth.
NARRATOR: ... to the downs.
A photograph shows Mike smiling with his dark-skinned daughter.
MIKE: My daughter asked me the other day, "So, uh, Dad, since you have vitiligo, is it possible that I have it too?" And that was the first time she ever…
KRESHA: Wow.
MIKE: ... gave it any- any thought.
A photo of NaTarsha appears sitting in a chair. She has pigment loss around her eyes and mouth.
NARRATOR: ... and everything in between.
A split screen of Bryson as he views an image of himself as a teenager. His younger self frowns and is spotted with pigment loss.
BRYSON: I would love to just be able to meet and connect with other people that might not feel as comfortable in their bodies, um, because I know what that's like.
A video montage appears of individuals with vitiligo speaking.
NARRATOR: It's time every person with vitiligo has the chance to share their POV…
Mobola speaks to Bryson
MOBOLA: So, for me, it's definitely a journey that I'm still figuring out where I stand exactly.
Mobola speaks to Mary. Camera zooms in on Mary’s elbow with pigment loss.
NARRATOR: ... openly, completely, honestly.
Mary sits with Brandon.
MARY: It's important to know that it's okay not to be okay.
Kresha and Mike share a comforting embrace.
KRESHA: Thank you. Thank you. I'm unique. I am one percent of the world. Like, how cool is that?
Bryson stands pensively before a projected image of his face on the wall.
MOBOLA: If you had to pick between normal, no vitiligo, or who you are today, what would you pick?
Mobola speaks to Bryson.
BRYSON: That's a tough question.
Mobola gives an understanding nod.
TEXT ON SCREEN: There’s so much more to the story
LOGO: POV POINTS OF VITILIGO. WATCH THE FULL SERIES
TEXT ON SCREEN: This video is sponsored by Incyte Corporation. © 2022, Incyte Corporation. MAT-DRM-00418 09/22
YOU ARE ABOUT TO LEAVE THISISVITILIGO.COM
You will now be directed to another website that is not maintained by Incyte Corporation. Please note that Incyte is not responsible for the content on this site.
Are you sure you would like to leave the ThisIsVitiligo.com website?